National Infertility Awareness Week kicked off a few days ago. Anyone who has read this blog for any length of time knows infertility is something I feel passionate about. The fact that its the same week I start my maternity leave is just ironic.
Twelve percent.
On a normal basis inclusion in a somewhat special, different or elite group would excite me.
Graduating in the top 10% of my high school graduating class. And above a certain grade point average in college and grad school.
Percent of people in the US who have run a half marathon: 17% (though not 100% sure about this stat, it was harder to find) (source)
Percent of people in the US who have run a marathon: .05% (source)
Graduating at the top 10% of my high school class isn’t really as relevant anymore, but I have to say that it feels satisfying knowing I’ve done something that only .05% of others have done.
Percent of couples who suffer from infertility: 12%
I got included in this group, too.
I read back through several old blog posts I wrote during our IVF cycle, and doing so brought back many memories of worry, anxiety, hope and fear. And this was during a time where we were given the best odds of achieving a pregnancy, meaning that I had the most hope of any other attempt and yet still felt mostly fearful. It is difficult for someone who has not been there to understand, and I get that, because I remember some comments I made while younger and totally uninterested in children at the time, and just how insensitive they would have been to the wrong person. I, too, am guilty of saying stupid things. I won’t deny that.
We finished the nursery recently, and as it was being put together I spent a good deal of time resting, sitting in the glider and looking at everything in awe. I felt amazed and grateful, like I couldn’t believe it was in our house. That this monster belly houses two babies. That the constant jiggling I feel is their movement. I remembered what we went through to get here.
Around 90% of couples are able to get pregnant on their own within the first year. The rest who haven’t then usually begin to seek treatment. Many are unsure where to start. I got a bit of a jump on our situation because I had always had irregular cycles and asked for some testing during a routine visit. My hormone levels were all normal, but it was discovered that I had a blocked tube. Nevertheless I was told “you only need one”. One didn’t work. We sought out a fertility specialist and discovered that due to testosterone replacement therapy, hubby had no sperm. And that the chances of recovery were not guaranteed. Several months of further testing lead to some sperm but only enough for the mack daddy: IVF. A VA hospital endocrinologist put him on a regimen of other hormones which did at one point raise his count to within normal limits nearly 8 months later. But then my blocked tube issue got in the way. We set up and postponed two IVF cycles before diving in, trying and hoping for a miracle naturally in the meantime.
It never happened.
There were hundreds of days counted, ovulation sticks used and prayers sent up. Hundreds of runs used to rid myself of the frustration. Many conversations about whether my desire to have children or my relationship was more important because it became such an obsession. Much bickering when not enough attempts were made during that critical window allowing us to have the best chance. Depression. Tens of thousands of dollars. Damaged and nearly damaged friendships. 3 years. Jealousy. Lots of jealousy.
Thousands of tears.
And in the end we were lucky. We needed only one IVF cycle. So many attempt cycle after cycle without success and continue to push through. It is a feat that I cannot imagine. We may be nearing the light at the end of the tunnel but it doesn’t mean we come out on the other side unscathed. This 12% is not a group I would have elected to add to my list and yet that is how it happened.
Pardon my mouth when I say this: this shit is no joke. And if you happen to know someone going through it, just keep that in mind.
We will never forget.
For more information (if you are going through infertility or just want to learn more), visit Resolve’s website. They can probably manage to explain it without the use of curse words. 🙂
April 23, 2013 at 9:16 am
An excellent post! I will never forget – infertility was the most personally gut wrenching roller coaster struggle of my life – and I am a cancer survivor. On my website you will see the Infertility Awareness symbol – if this symbol was out in the world at even a fraction of the pink ribbon what a difference in understanding and compassion it would make for all those suffering from infertility now and in the future. 3+ years since my son was born and you are right – I will never forget the agony of infertility.
April 24, 2013 at 9:39 am
Oh my goodness, I have to run over and see your blog now. As someone who has been through IF and cancer, I’m so interested in how you view both crises.
April 24, 2013 at 9:43 am
PS I hope you don’t mind, but I’m going to quote this on my professional FB page (since this blog is public, I’m hoping that’s okay). You can find the link to my FB page on my blog.
April 24, 2013 at 9:44 am
I’m not sure if you’re asking me or Patrice but that is completely fine with me 🙂
April 23, 2013 at 11:25 am
So very well said. No one wants to be part of this club and yet those who aren’t part of it don’t really get how hard it is. And even after the baby grows into a toddler, the pain of infertility isn’t forgotten. It just never leaves you, no matter how far removed you become. I wish I could send all of my less-informed family and friends over here to read this post.
April 24, 2013 at 9:40 am
No doubt about it….infertility changes people forever.
April 24, 2013 at 9:41 am
This is such a great post….it highlights the affects of IF even after success. Nicely done.
Thanks for visiting my blog: ICLW#34
April 24, 2013 at 9:42 am
Thank you 🙂
April 24, 2013 at 9:49 am
Hi! I’m here from ICLW… We are on the cusp of IVF, and it’s the scariest thing ever. Whether I end up having kids or not, I don’t think I’ll ever forget how awful this whole IF experience has been. And I haven’t even been through IVF yet. Good luck to you! I hope everything goes well with the birth.
April 24, 2013 at 9:50 am
Thank you. If you ever have any questions about IVF please feel free to ask. If was a scary process but was our best chance so also allowed us the most hope. Fingers crossed for you.
April 24, 2013 at 1:57 pm
So happy to hear about your monster belly and your babies safely snuggled down inside. I am here from ICLW and I we are at the very start of our journey with “help” from the outside. I hope we are as successful and that room in our house which will always be the nursery in the back of my mind will one day get to fulfill it’s destiny.
April 24, 2013 at 2:01 pm
Do you know what kind if treatment you are going to start with? Here’s hoping you find success early and can start on that room ASAP!
April 25, 2013 at 4:35 am
Hey, congrats on the baby to be and good luck for the birth. So glad you had success with one IVF. We got even luckier and got preg the week before IVF (although we had done two IUIs).
April 25, 2013 at 12:40 pm
Here from ICLW – Congrats on your babies being almost here! I really wish I could run a half-marathon. I love running, but it is hard to find the time to do it. i’m hoping to manage a 10K sometime in the next few months (before it gets too hot).
April 25, 2013 at 9:32 pm
Very well said! I am so glad you tied it in to the statistics of running a marathon and half-marathon. I read this post I thought to myself the women who completed a marathon (I am talking solely about running marathons) are heroines, tough women who seriously kick it. So congratulations on being one of them.
And you are right (pardon my French as well), this shit is no joke. Being a part of this 12% has tested every part of my being. It has tested my marriage, friendships, and relationships with my family. My last post The Happiest Place on Earth talks about finding that finish line. Some day I will find that finish line.
However, I am so incredibly excited that Bubbles and Squishy – congratulations on their impending arrival.
P.S. I just left a comment on your pictures and used the wrong email address. My apologies!
April 25, 2013 at 9:52 pm
The importance of the finish line is precisely why I titled my blog what I did Whether its running, infertility, an activity etc its what we are striving for! You will find yours too! And when you cross it it will be that much happier. (That’s awesome about speed skating too!!)
Thanks for the congrats! We are patiently counting down 🙂